[HN Gopher] Ask HN: Does anyone have celiac disease and how do y...
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       Ask HN: Does anyone have celiac disease and how do you deal with
       that?
        
       Hello, I would like to know if anyone has celiac disease and how do
       you deal with that? I know that this is not reddit or Facebook
       group, but I would like to hear opinion from you. For example, in
       my country (Lithuania) this disease is still quite rare, and it is
       quite hard for others to understand the depth of it. For example,
       even with grandparents I still need to tell them that they can't
       give any buns for kids, even single one or that you can't cook in
       the same pan if you cooked something with wheat and so on. My
       family has not been in a proper restaurant since we found about the
       disease. What are the most gluten free countries? How do you deal
       with this?
        
       Author : gretar
       Score  : 11 points
       Date   : 2020-02-29 22:03 UTC (57 minutes ago)
        
       | metaxy2 wrote:
       | I'm sorry that I can't directly help you (although I have IBS and
       | a couple of other chronic diseases, so I can sympathize). But it
       | makes me wonder if there's an opportunity for a startup, or even
       | just a nonprofit online community, here. The targeted community
       | being people with rare diseases in countries that are too small
       | (or don't have the communications infrastructure) to offer good
       | support. There's an especially big opportunity to do good in
       | situations like this, where the disease is incredibly common
       | overall, but apparently rare where the OP lives, so there is tons
       | of information online but probably very little is written in
       | Lithuanian or targeted to local needs.
       | 
       | Or maybe there's stuff like that out there already that we'll be
       | able to share with gretar, in which case, even better!
        
       | Moru wrote:
       | A problem with gluten free diet is that it has become one of the
       | popular diets for living healty. So when you go to a restaurant
       | and ask for gluten free food, they think you just want the diet
       | version, not the celiac disease version. The diet version isn't
       | totally free of gluten, just reduced gluten content.
       | 
       | Some restaurants are even asking for a paper to show you have the
       | disease because they are tired of all the people asking for
       | gluten free just because they are on a diet.
       | 
       | Don't have it myself but was working with someone that have it,
       | together with a number of other food alergies.
        
       | Gatsky wrote:
       | Big cities in Australia have a lot of gluten free options.
       | 
       | There are some interesting therapies on the horizon, basically a
       | pill which contains an enzyme that breaks down the gluten before
       | it can reach the small intestine [1].
       | 
       | I believe Coeliac disease will be cured in the next 20 years. The
       | pathway to doing this is deleting the population of immune cells
       | (T & B cells) which maintain the gluten sensitivity.
       | 
       | [1] https://endpts.com/takeda-swoops-in-to-buy-little-biotech-
       | pa...
        
       | oconnore wrote:
       | American Test Kitchen has a gluten free cookbook with recipes for
       | bread, pizza, pancakes, etc. It's really good, and very
       | informative.
        
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       (page generated 2020-02-29 23:00 UTC)