[HN Gopher] Things I've noticed while visiting the ICU
       ___________________________________________________________________
        
       Things I've noticed while visiting the ICU
        
       Author : exolymph
       Score  : 98 points
       Date   : 2022-11-18 20:21 UTC (2 hours ago)
        
 (HTM) web link (trevorklee.substack.com)
 (TXT) w3m dump (trevorklee.substack.com)
        
       | HEmanZ wrote:
       | These threads always have lots of people jumping on doctors and
       | their decisions/callousness/lack-of-reason/etc.etc.etc. My wife
       | is a physician (OBGYN) at a major city hospital that primarily
       | serves a very poor population. I'd like to share her schedule,
       | and see if you think what kind of care you could perform under
       | these circumstances:
       | 
       | Monday - Friday - Wake up at 4:30 AM - Get to hospital by 5AM to
       | start rounding on patients - Sometimes work inpatient all day
       | sometimes clinic thrown in, but usually not done working until 7
       | PM, without even a 15 min break or a chance to eat a meal (15
       | hour day) - Come home and do about an hour of notes - At least
       | once per week, wake up in the middle of the night to deliver a
       | patient who asked for that kind of continuity of care.
       | 
       | Saturday: - Wake up around 5am to be in by 6am to start the day -
       | Work inpatient, usually without time for a 15min break for food,
       | until 10AM SUNDAY (28 hours shift)
       | 
       | Repeat 49 weeks/year (days of 24/hr shift can vary and she
       | usually gets one weekend off/month). Her average time at the
       | hospital last year was 96 hours/week.
       | 
       | How much confidence do you have that you'd be able to take care
       | of a complicated pregnancy at the end of a 28 hour shift, having
       | not eaten for more than 24 hours, having 10 other patients on
       | your mind, and having had only a couple of hours sleep the night
       | before? It's no wonder to me anymore to me birth outcomes are so
       | bad in understaffed hospitals in poor areas...
        
         | thfuran wrote:
         | That sounds illegal.
        
           | HEmanZ wrote:
           | Nope, not where we live.
           | 
           | I have seen administration do some blatantly illegal shit
           | around physicians with COVID, but I don't want to write that
           | up here.
        
           | rscho wrote:
           | Doctors answer: yes. And?
        
         | chips_n_fries wrote:
         | And she is not a resident or in a training/certification
         | program?
        
       | DoingIsLearning wrote:
       | > So, when it comes to prescribing (...) Giving psychiatric
       | medicine "as needed"? Go wild.
       | 
       | This implies a lack of duty of care which is painfully unfair.
       | 
       | As a counter story to this I have a friend of mine who is a
       | _former_ ICU nurse with a gigantic scar on her forearm.
       | 
       | I much later in our relation found out that the scar is from a
       | patient who basically ripped her forearm biting down on it while
       | she was trying to stop him from tearing out a central line in his
       | own neck.
       | 
       | It's ironic that in trying to stop a patient from having a
       | massive central line bleeding she ended up bleeding herself.
       | 
       | Outside hospitals we fail to realize how disoriented and
       | irrational patients can get when coming out of anesthesia or with
       | certain diseases.
       | 
       | So yeah 'as needed' is absolutely right because everyone is
       | entitled to work in a safe environment.
        
       | maxerickson wrote:
       | The solution to difficulty booking doctors isn't to pontificate
       | on how to allocate their time, the solution to difficulty booking
       | doctors is to make more doctors.
       | 
       | There's lots of levers that could be pulled in the US. Cut down
       | on undergraduate requirements, incentivize large health systems
       | to fund more training (people like to complain that the federal
       | government only funds a fixed number of residency slots, as if a
       | trillion dollar industry is just absolutely helpless to do
       | anything).
       | 
       | Medical care suffers under the bizarre idea that central planning
       | and capacity management will control costs. Meanwhile, costs are
       | spiraling up and up and up. Train more doctors and all the stupid
       | games being played to optimize their utilization start to go
       | away, because it is less worth it when demand is less than
       | supply.
        
         | spfzero wrote:
         | I get what you're saying, but I don't think more doctors is the
         | answer. Hospitals will only hire the absolute minimum number of
         | doctors they can possibly get away with, other than the ones
         | who actually bring in new business.
         | 
         | This is the reason: as soon as the medical industry has
         | established a consensus price for some procedure or other item
         | of care, the hospital administration starts to work on figuring
         | out how to do it for the least possible cost. The price has
         | been set in stone, no need for further justification. Medicare
         | or whoever WILL pay that much. The price is fixed so the only
         | knob left to turn is cost, and cost will be reduced all the way
         | down, until service is just above a level so poor that patients
         | would decide to stay home.
        
         | natosaichek wrote:
         | Totally agree. Also, let people open more medical care
         | facilities. Right now "Certificate of Need" legislation is
         | killing lots of viable options for care _outside_ hospitals.
        
         | e40 wrote:
         | On why there are too few doctors:
         | 
         | https://www.theatlantic.com/ideas/archive/2022/02/why-does-t...
        
         | ntonozzi wrote:
         | .
        
           | maxerickson wrote:
           | It's not illegal for other entities to fund residencies!
           | 
           | I anticipated your argument in my other comment...
        
         | NegativeLatency wrote:
         | Just getting accepted to a medical school is pretty hard unless
         | you're amazing/very good at the tests.
         | 
         | Had a cousin and a friend (both I would characterize as smart
         | and hard working) take several years after undergrad and
         | eventually "settle" for physicians assistant schools.
        
           | j-bos wrote:
           | I personally want my doctors to be amazing and very good. For
           | now tests a a fair proxy for that, it's the 8 years that seem
           | ridiculous, esp when looking at non US countries.
        
       | ncrmro wrote:
       | I woke up in the ICU after getting hit on my motorcycle with a
       | brain bleed and ton of other damage and all I can say it I'm
       | super grateful for everything they did.
        
       | Ensorceled wrote:
       | I noticed a lot of the same things when my dad was in the ICU.
       | Some additional thoughts:
       | 
       | 1. "Almost every patient has delusions and nightmares" I
       | personally felt "off" when visiting my father. The sounds,
       | smells, lights and constant buzz of activity all contributed to a
       | feeling of being in a surreal dreamworld. Lack of sleep
       | contributes. I can't imagine what my father experiencing.
       | 
       | 2. Food was HORRIBLE. One meal was a low quality hamburger on a
       | plain, white bread bun with a slice of "american cheese", fries,
       | iceberg lettuce salad with a couple of slices of cucumber and a
       | single slice of tomato, a container of apple sauce and glass of
       | milk. Lots of salad dressing and ketchup. They wouldn't let us
       | bring better food into the ICU and my dad didn't want to "make
       | waves".
       | 
       | 3. Family is critical. My father got better care because I, or my
       | brother, was there to act on his behalf. Having obnoxious family
       | members is worse than having none from what I saw.
        
       | tomcam wrote:
       | Very well thought out article, but I promise your life will
       | improve if all you do is read the caption on the first image.
        
         | parker_mountain wrote:
         | This is not a picture of a real hospital. This is a picture of
         | Mystic Falls hospital, from the CW show "The Vampire Diaries".
         | If I remember correctly, the guy on the left is an evil vampire
         | hunter (the vampires in the show are mostly heroes, except when
         | they're evil and trying to take over the world), and the doctor
         | on the right is maybe a vampire? Or she might just be friends
         | with a vampire but not realize it. Or she gets killed by a
         | vampire. I forget and refuse to look it up. It's a really
         | stupid show.
        
           | bombcar wrote:
           | I suspect it IS a real hospital, depending on if the show was
           | set in a hospital or not. If they only needed it for a few
           | scenes, you just rent out a hospital or something that looks
           | similar enough.
        
             | bbarnett wrote:
             | No, it's a real hospital, and a real scene, but they're all
             | reverse vampires.
        
               | bombcar wrote:
               | Isn't a reverse vampire just a blood infusion doctor?
        
       | a_shovel wrote:
       | I don't have much personal experience with hospitals, but there's
       | a trend I've noticed across several articles now where the
       | medical system is characterized by an unpredictable and frequent
       | alternation between extreme competence and extreme incompetence.
       | 
       | The author's dad was being seen by a variety of highly trained
       | specialists all working to treat him, but "people need to sleep"
       | seems to be a recent discovery in the ICU world, and if his
       | family hadn't been there to help, every new nurse would have
       | tried to give him the same medication that gave him a bad
       | reaction, over and over, just because there wasn't an established
       | place to write that (obviously important) information down.
       | 
       | I've read that food with better nutrition than regular hospital
       | food may reduce mortality rates by as much as _half_ [0]. That 's
       | such a huge effect that it's shocking that hospital food is just
       | expected to be bad. Everyone says nutrition is vital for health,
       | but hospitals don't seem to care.
       | 
       | I think the root problem is cost-cutting. Management cuts costs
       | until the brink of disaster, and tries to hold it there for as
       | long as possible. This is not a system that strives for the best
       | outcome for patients within reasonable limits of the resources
       | available; this is a system that attempts to extract as much
       | value as possible from the patients, and patient death is only
       | prevented as a means to that ends.
       | 
       | [0]
       | https://www.sciencedirect.com/science/article/pii/S073510972...
        
         | blue039 wrote:
        
         | tunap wrote:
         | >"people need to sleep"
         | 
         | Sleep is almost impossible with regular check-ups... 30 min or
         | 60 min, don't remember. Excepting the comatose and most
         | medicated(maybe not?), a person's sleep cycle is unable to
         | reach REM when a stranger approaches and fiddles on regular
         | intervals. I would think monitoring from afar(sensors, cameras)
         | would be more beneficial, but I was informed the liability
         | factors preclude such remote monitoring.
         | 
         | edit: to add context, I slept in the room on separate occasions
         | with 2 family members. While tests were not performed, the
         | regular checks were mandated. I was exhausted after my shifts
         | ended.
        
         | cactus2093 wrote:
         | From reading the abstract you are completely mischaracterizing
         | this study.
         | 
         | For the average person healthy food usually means food with
         | fewer calories and more micro-nutrients, like eating more
         | broccoli and less white bread.
         | 
         | This study is about malnourished patients who need more
         | calories than they can even digest from an average meal so they
         | need specialized high-calorie foods that are customized for
         | their own metabolism. It's essentially exactly the opposite of
         | what "healthy food" means in any other context.
         | 
         | So it has nothing to do with any narrative about cost cutting
         | and the quality of ingredients used in hospital cafeterias.
        
           | cco wrote:
           | A closer reading of the intervention shows that it wasn't
           | _just_ "more calories".
           | 
           | But I think that is missing the forest for the trees, what
           | this study showed is that when a patient is left on their
           | own, they consume an inadequate diet that _puts their health
           | at risk_ in a hospital. By a big margin!
           | 
           | I would imagine, though the study didn't show this, that the
           | primary factor in recovery here was having a human
           | (dietician) actually paying attention to your recovery. On
           | intake they put together a plan, and followed up routinely to
           | ensure that the patient has consuming their diet.
           | 
           | The GP's point is valid, hospitals are missing out on a 50%
           | increase in health outcomes because they're letting patients
           | fend for themselves with regard to nutrition. You're right
           | that it isn't as easy as spending $6 per meal vs $3 to buy
           | "better" food. But what it means is that hospitals are
           | failing their patients because they aren't thinking and
           | acting with a holistic eye towards patient outcomes.
        
         | Negitivefrags wrote:
         | I don't think the problem is cost cutting. I think the problem
         | is just the same problem that every human enterprise has.
         | 
         | Most people just don't give a shit outside thier immediate
         | responsibility.
         | 
         | Looking at the global view and actually making changes that
         | require persuading other people is a hard and often thankless
         | task.
         | 
         | Many people who do give a shit get this crushed out of them
         | early in their career by the negativity you will face if you
         | try.
         | 
         | Much easier to just accept the status quo.
         | 
         | Occasionally you get a group of people who really care and come
         | together determined not to let things be crappy and they can
         | form an organisation that is significantly more effective for a
         | time. But once the rot of "We can't fix things" sets in, it's
         | really really hard to turn things around.
        
           | msrenee wrote:
           | Cost cutting is definitely to blame for how understaffed
           | hospitals are. Then Covid happened and it got even worse.
           | It's definitely not all due to Covid though. Even the "not-
           | for-profit" medical group in my area has been pushing doctors
           | and PAs to take more and more patients, well past what
           | they're comfortable with. Nursing staff has been cut down to
           | nothing compared to 10 years ago. Wages haven't gone up to
           | match the increase in workload.
           | 
           | Again, this started before Covid, the pandemic just
           | highlighted how much these cuts screwed over both healthcare
           | professionals and patients.
        
           | rscho wrote:
           | I work in a hospital, and occasionally in ICUs. You're wrong.
           | Most workers are very much jaded, but they do care. Problem
           | is, the system crushes you to death if you don't set pretty
           | harsh limits to protect yourself. In a lot of cases, that
           | means de-humanizing your work, put your feelings aside and
           | work like a machine. Good little machines are just what
           | management wants, right? Now higher management... wow, those
           | people really don't give a hoot about anything that's not
           | themselves!
           | 
           | A second major contributor to inertia, is that the
           | initiatives from lower echelons are usually set for failure
           | by the intricacies of bureaucracy. And said bureaucrats are
           | completely unimaginative about what they could do to fix
           | things, because they never leave their office to see what's
           | really happening in the trenches. So yes, in fine the problem
           | is the extreme stupidity stemming from human collective
           | behaviour. Complain, and suddenly _you_ are the problem!
        
             | gowings97 wrote:
             | What percent of patients have a medical need to be woken up
             | every few hours then?
        
               | rscho wrote:
               | You'd be surprised to see what happens to staff going
               | against waking up patients all night. You get the
               | "dangerous sloth" sticker on your forehead real quick on
               | the morning grand rounds.
        
           | halpmeh wrote:
           | Everything you said is spot-on, but, brining things full
           | circle, the lack of "shit giving" could be due to cost
           | cutting. People don't have an incentive to care. The end
           | result, vis-a-vis their personal situation, is unchanged
           | whether or not they go the extra mile. Part of this is
           | because they exist in a rigid corporate structure hyper-
           | focused on value extraction and not at all focused on the
           | development of human capital.
        
         | lazyasciiart wrote:
         | I don't know why the haldol reaction didn't go in his chart,
         | but the whiteboard in the room (which is present in every high
         | level hospital room I've been in) is _exactly_ where the TV
         | information and other patient preferences should be, and is the
         | second best place after the chart to put a drug reaction. Cost
         | cutting has nothing to do with "nobody wrote it on the place
         | for writing it".
        
         | colechristensen wrote:
         | >The author's dad was being seen by a variety of highly trained
         | specialists all working to treat him
         | 
         | The training doesn't really matter. Context is very important
         | as is caring about doing a good job. You'll find a severe lack
         | of both in hospitals. You eventually have to stand up and
         | defend yourself against bad healthcare... or search endlessly
         | for good healthcare which is terribly difficult to find.
        
       | citilife wrote:
       | For point #4 (about sleep) and point #5 (about delusions) - these
       | are probably related. If you don't get enough sleep you get
       | rather paranoid.
       | 
       | Having been in the ICU with various family members I notice they
       | check on you A LOT and that often will wake you up. This lack of
       | consistent sleep (either from injury, illness or checks) make
       | people rather paranoid. Further, sitting still and waiting often
       | makes people a bit stir crazy.
        
       | ivraatiems wrote:
       | My wife is a physician who works in a critical care setting. She
       | did not read or approve this post; these are my thoughts as
       | someone who hears a lot about the other side of this environment:
       | 
       | For the most part this seems like a sensible and reasonable
       | article communicating what must have been an extremely difficult
       | situation for the author. In case the author reads this: I'm
       | really glad your dad got better and I know everybody working in
       | the hospital appreciated the amount of patience and restraint it
       | seems like you showed in helping him without being that patient
       | family member who goes off the handle about everything. (There
       | are so many of those.)
       | 
       | Many of the issues the author points out are very real -
       | constantly-rotating doctors, attending disregarding consults once
       | the consult leaves the room, the ICU not being set up for
       | anything but bare survival - all of that is totally true from
       | what I understand. I think, if anything, the author fails to
       | understand how systematic and critical those issues are when he
       | says things like this:
       | 
       | > So, digestive issues, hormonal issues, and mental issues all
       | get short shrift. Basically, if there's an obvious symptom, a
       | consult will come in to try to treat the symptom. Then they'll
       | take another test in a day or so, see what happens, and go from
       | there. There's no sense of a scientific method, reasoning from
       | first principles, or even reasoning from similar cases though.
       | 
       | I don't think this is giving the medical practitioners a fair
       | shake here. Doctors do a huge amount of this kind of reasoning
       | and research, even in the ICU. The trouble is often not a lack of
       | reasoning, but a matter of, as with everything else you note,
       | resources. Like you realized, the goal of the ICU is "keep
       | patients alive at all costs, and worry about their comfort once
       | they're able to be alive without our help for a while." Judgments
       | are made with that in mind. It's not that they can't do reasoning
       | about complex problems, it's that spending time on a complex but
       | non-fatal problem means somebody with a potentially fatal problem
       | won't get that time, and that's not what the ICU is for. Anything
       | that can be solved later... will be solved later.
       | 
       | So the real question is not "Why didn't they help this patient
       | with his digestive issues?", it's "Why didn't they move this
       | patient out of the ICU once he reached the point where non-life-
       | threatening digestive issues were relatively of any importance?"
        
       | possiblydrunk wrote:
       | From personal experience, one of the most frustrating things
       | about the ICU (if you're there for any anything beyond a day) is
       | dealing with the variability in the availability, skills, and
       | temperaments of the nurses on duty. The 'right' nurse can make a
       | huge difference in how fast the patient recovers and how
       | difficult the stay is.
        
       | mberning wrote:
       | I think people expect that things could go significantly better,
       | if the "system" were better. I disagree. In most cases, by the
       | time they hit the ICU, you have a patient that is circling the
       | drain from old age and chronic conditions and all you can do is
       | manage it. No amount or quality of care is changing the outcome.
        
       | jeffrallen wrote:
       | Hospitals make you sick. Intensive care unit make you intensively
       | sick. What a tragedy that something we need so much is so bad for
       | us.
        
       | [deleted]
        
       | osmano807 wrote:
       | Surgeon here. I'm about more surprised by the discussion here
       | than from the article itself.
       | 
       | > 2. There are many consults, but the ICU attending is king (or
       | queen). There's a concept called _doctor 's autonomy_. The
       | attending physician has the primary "guard" of the patient care,
       | so unless dynamics of power, consultations are more like
       | suggestions than law. So, the final care is generally dependent
       | on the attending physician, for good or worse, be lack of
       | confidence in the other physician be his perceived better
       | understanding of the disease.
       | 
       | > 3. Sometimes nurses are the footsoldiers of the ICU regent, and
       | sometimes they're governors. I saw examples of nursing saving and
       | harming patients while disobeying orders. They have a co-
       | participation in care and generally have studied to a degree that
       | enable them to make some decisions.
       | 
       | > 4. Everyone agrees that sleep is important, but nobody has any
       | idea beyond that. We have decades worth of knowledge, but _de
       | facto_ we don 't have a systematized and validated way of sleep
       | care. We have studies on daytime nap and on sedatives effects on
       | quality of sleep, but no full truths. Some day we'll have a
       | better care.
       | 
       | > 6. The ICU staff is literally constantly changing. The
       | institutional memory are the patient medical records. If the
       | Haloperidol adverse reaction was not noted in there, it was a
       | fault of the care providers. Sometimes nurses chooses to ignore,
       | and the repercussions should be analyzed case by case. The cited
       | whiteboard worked as an "expanded" medical record, as registering
       | that trigger could be seen as too tangential to a disease focused
       | medical record.
       | 
       | > 7. The ICU is great at managing acute issues, and struggles a
       | lot more with longterm issues. Long term issues are not the
       | concern of ICU. If it's not critical, the care can and maybe
       | should be postponed until better. Of course, we have to be
       | prudent, for example bowel function could be potentially urgent
       | if not intervened early. Frequently I could and should not treat
       | patients depression on an ICU, but it's reasonable to treat
       | intrusive symptoms of early post-traumatic stress disorder, for
       | example.
       | 
       | Free T4 is the method used to assess thyroid hormone
       | supplementation, not TSH. Delirium, delusions, illusions and
       | hallucinations have a non-pharmacological and pharmacological
       | treatment, and antipsychotics are not the only ones used.
       | 
       | > 8. The ICU is a good place to not die, but a bad place to
       | recover. The ICU is meant to give patients a better opportunity
       | to not be critical anymore. When they're not critical, we start
       | to deescalate our measures, such as monitoring and IV lines, for
       | example.
       | 
       | People are different, and so are doctors. As the good, so the bad
       | sprouts everywhere.
        
       | pmarreck wrote:
       | Excellent criticisms (having dealt with my mom's passing in 2020)
       | 
       | I noticed that the incessant beeping all night has decreased
       | quite a bit, of late (at least in my local hospital, St. Francis
       | Heart Center)
        
       | rootusrootus wrote:
       | As a counterpoint, my experience with my dad being in the ICU was
       | great. They saved his life a couple times when he needed to have
       | his heart paddle-started. And they managed to stabilize him and
       | let him get sleep as much as possible so he could be transitioned
       | out of the ICU. I never once got the impression that anyone was
       | incompetent, or that they were having trouble remembering
       | strategies, reactions to medicine, etc.
       | 
       | But this was Kaiser. Other hospitals may indeed be a shit show.
        
         | wahern wrote:
         | I wonder if there's a selection effect where on the one hand
         | particularly demanding people avoid Kaiser because of the
         | somewhat impersonal policies and practices, and on the other
         | hand as an HMO Kaiser enjoys a much lower percentage of
         | indigent and high-risk patients, which altogether permit Kaiser
         | to build a system around the 80% instead of the 20%.
        
       | chiefalchemist wrote:
       | When when one of my parents had a stroke years ago, we spent a
       | week in the ICU. It was a special ICU for stroke victims. The
       | care and staff were exceptional. We were lucky such an ICU was in
       | our area.
       | 
       | On the other hand, subsequent hospital visits (non-ICU) were a
       | cluster fuck. Noise, lights on, nurses constantly waking my
       | parent up, could-care-less doctors, etc. And getting healthy
       | enough to be transferred to an extended care facility was a shit
       | show. It's was like the hospital but worse. Both experience
       | seemed to have little to do with health and recovery.
       | 
       | My point is, the article author is in for a shock once his dad
       | gets out of the ICU and into the "general population". I can't
       | imagine that's going to be better than the ICU. I hope I'm
       | mistaken.
       | 
       | My take away from this experience is:
       | 
       | 1) Make choices that maximize your health the best you can.
       | 
       | 2) If you can, be rich - like fuck you money rich. The kind of
       | rich where your "general population" hospital experience will be
       | like being in the ICU.
        
         | rscho wrote:
         | Rich people always get the worst possible care, in my
         | experience. Life-prolonging care, yes. But at what cost? Those
         | are the people that get the most "experimental" medicine out
         | there. Rich people select for the most greedy docs, not for the
         | most capable ones.
        
       | [deleted]
        
       | warner25 wrote:
       | > There's no sense of a scientific method, reasoning from first
       | principles, or even reasoning from similar cases though. It's all
       | shooting in the dark, and most of the time I felt like I could
       | have done just as good a job on these longterm issues...
       | 
       | This articulates very well what I've usually felt when dealing
       | with doctors. It's like the story of a programmer finding that
       | his code outputs 5 when it should be 4, and then adding...
       | if(return_value == 5):             return_value = 4
       | 
       | ...to fix it, and being satisfied. What I _want_ is something
       | like in the television show _House._ The main character is
       | unhinged and anti-social and takes extreme risks, but at least he
       | demonstrates curiosity to really figure out and understand the
       | root of what 's going on. To be fair, I don't actually think that
       | doctors lack curiosity or are incapable of doing this, the
       | medical _system_ as it 's set up just doesn't allow it. For
       | chronic issues, I've usually figured them out for myself, as a
       | layperson, by persistently keeping track of things, searching the
       | web, reading, and experimenting over months and years.
        
         | rscho wrote:
         | I'm sorry but curiosity and creativity are certainly the ndeg1
         | enemy of the patient, especially in ICU settings. Curiosity and
         | creativity are grandpa's medicine, and a total antithesis to
         | evidence-based modern medicine, that attempts (and largely
         | fails) to be an application of science instead of the whims of
         | the decision-makers.
         | 
         | What you should want is curious and creative _researchers_, but
         | precise and totally unimaginative clinical staff. Those are
         | often the same person. See the problem? You want protocols
         | applied down to the last detail. You want nothing left out of
         | standard operating procedure. That's what kills patients in
         | practice.
         | 
         | You might mean creativity in the sense of "let's have guys who
         | think about the right things, and search for rare diagnoses and
         | analyze stuff to see what could work, like Dr House". But that
         | simply can't be done in practice. You can't be testing for
         | every rare thing, because the tail of low probability diagnoses
         | is much too long! And believe me, you _really_ don't want
         | creative doctors around...
        
           | titanomachy wrote:
           | If medical treatment was actually as formulaic and fully-
           | solved as you imply, we wouldn't take the best students of
           | every generation and make them spend ten years training to
           | become doctors. We'd just have nurses, checklists, and
           | diagnosis flowcharts.
        
             | rscho wrote:
             | I'm precisely not implying that medicine is currently
             | "fully solved". I'm implying that we should strive to
             | gather more information, synthesize it better and study how
             | to make it useful.
             | 
             | As a clinician, I'd say yes to a bicycle for the mind. But
             | currently, my job is already plenty full with worrying
             | about applying what's known in a correct manner without
             | seeking to break new ground while treating patients, which
             | would be very dangerous and given the odds of success, very
             | stupid. What I'm implying is that the general public has a
             | completely skewed view about what really kills patients in
             | the ICU: mundane infections and "medical errors", which are
             | not really errors at all but in a large majority of cases
             | failures and complications of usual procedures.
        
         | jmhmd wrote:
         | The main thing that House MD has, that no other doctor in the
         | world has, is not so much his superior intellect. It's that he
         | and _five_ other doctors spend 100% of their time on a single
         | case, and can sit around all day discussing it, trying
         | different things. If real world doctors had even a fraction of
         | that luxury, you would see a lot more of what you describe.
        
           | lazyasciiart wrote:
           | Also, the cases are usually in desperate enough straits that
           | "here, swallow this seagull poop!" doesn't get hints thrown
           | out of the hospital.
        
           | coding123 wrote:
           | Jeez, no kidding. I imagine if they made a realistic doctor
           | show they'd be constantly showing the doctor at the bar (on
           | days off) trying to make money on side gigs like health
           | startups.
           | 
           | Stumbling in a hangover to appointments on "work days" and
           | giving everyone the same diagnosis as the last (and likely
           | whatever sickness they themselves had recently). Also giving
           | everyone fluids and an ativan so the patient says - "i feel
           | much better doc".
           | 
           | It's kind of an open secret that the ER just gives a
           | diagnosis of dehydration, provides fluids and ativan to get
           | the pipe rolling and charge $4k a pop. Sure they might catch
           | a case of undiagnosed covid, rsv or something else from time
           | to time.
           | 
           | Also I'm not kidding but I would LOVE such a show.
        
         | [deleted]
        
       | kingsloi wrote:
       | Interesting take.
       | 
       | I was in a paediatric cardiac ICU when my daughter battled with
       | heart disease for 7 of her 8 month life. Another dad who we got
       | close to in the ICU said the phrase "practising medicine says it
       | all...".
       | 
       | My experience is same same but different. It was during COVID, so
       | we welcomed the nurse change, sad/happy to see one go and welcome
       | another. Paediatric ICUs and their staff, I'd say are top tier in
       | most respects. Parents are involved with most/all decisions, and
       | nurses/drs respect most wishes, don't like your child being
       | disturbed at night for non-100%-necessary stuff? Ask social
       | services (etc) to print out a sign with your wishes and stick it
       | on your room door. May not 100% work, but worth a shot. It did in
       | ours.
       | 
       | Sleep is somewhat respected as this is when babies develop/heal
       | best, unfortunately it's an ICU, and these are sick kids who need
       | 24/7 complex care, so there's sometimes little wiggle room. I
       | attended a conference in Chicago on heart disease and it's
       | outcomes (npcqic.org), and sleep and proper nutrition (not just
       | feeding TPN) are definitely hot topics. I know the NICUs are
       | extra hard on any additional sleep/disturbance other than 100%
       | necessary.
       | 
       | But shoutout to nurses, drs, any medical staff, ICUs are sterile,
       | haunting, traumatic places. I witnessed things I can never
       | forget. They do the same, and have to do it again, and again.
        
       | anjc wrote:
       | > the next time you have trouble booking a surgeon or even a
       | gastroenterologist, you can remember that America's supply of
       | surgeons and gastroenterologists is being disproportionately used
       | by the AARP crowd.
       | 
       | What a horrible sentiment.
        
         | gopher_space wrote:
         | It's painfully easy to start thinking in numbers when you're
         | paying six thousand a month to warehouse your grandmother's
         | body.
         | 
         | The number of tests people want to run on someone we all hope
         | dies tomorrow is insane.
        
           | notacoward wrote:
           | Funny, I pay even more than you mention to support my own
           | mother in relative comfort in a nursing home, and I don't
           | find it "painfully easy" to think that way at all. I
           | certainly don't hope she dies tomorrow. You might want to
           | reconsider saying such things in public.
           | 
           | Note: my mother, not my grandmother, and I _have_ lived that
           | ordeal for several years. Some interaction is still possible,
           | but recognition has been beyond her for a while. As long as
           | she seems to take some pleasure in her surroundings, no
           | matter how dim or muted the signs, you won 't catch me
           | framing my thoughts about her in terms of dollars I could
           | save.
        
             | gopher_space wrote:
             | Sounds like your grandmother can still recognize and
             | interact with people. Mine was basically a warm body for
             | the last five years of her life.
             | 
             | Prolonging that existence is not a kindness in any sense,
             | and I hope you don't have to go through such an ordeal.
        
             | chki wrote:
             | I think a more generous reading of the comment you are
             | replying to could be (and probably is reasonable): It is
             | hard to pay a lot of money for somebody that is living in
             | agony with no chance of getting better, where death might
             | be a good option for them personally. I would not
             | understand the comment to criticize supporting people
             | living in relative comfort.
        
               | notacoward wrote:
               | "Warehousing her body" suggests otherwise. When people
               | talk about someone as a "body" they usually mean
               | insensate IMX. People whose loved ones are in pain tend
               | to use different, even more colorful, language. I know I
               | did, when that was the case.
        
               | chki wrote:
               | > People whose loved ones are in pain tend to use
               | different, even more colorful, language.
               | 
               | The human experience varies wildly and I would not make
               | such assumptions. Caring for somebody without the hope of
               | improvement for years can make you bitter or even resent
               | the person that no longer resembles the one you loved.
        
         | Mezzie wrote:
         | What's terrible about it?
         | 
         | I'm a younger (34) person with substantial healthcare needs (I
         | have MS). Everything is always oriented towards the old, and I
         | also pay taxes that are used to support them while getting
         | nothing in return despite having similar needs.
        
           | jewayne wrote:
           | You also seem to have MCS: Main Character Syndrome.
        
           | notacoward wrote:
           | > I also pay taxes
           | 
           | Do you really get _nothing_? And who is paying for whose
           | care? You mention taxes, but they 've probably been paying
           | taxes even longer. And why do you think health care is a
           | strict _quid pro quo_ anyway? Some of us believe care should
           | be allocated where it 's needed, not where it's paid for. Put
           | another way: why is it a problem that they _are_ getting
           | care? Isn 't it that you _aren 't_? This doesn't have to be a
           | zero-sum game. If you feel that you're in competition with
           | someone else for care, the problem is pretty clearly that
           | there aren't enough providing it.
           | 
           | Saying others have less right to health care is pretty
           | terrible no matter _which_ way the finger points.
        
         | cliquecover wrote:
         | It's horrible but true. How do you budget for and prioritize
         | access to scarce resources?
        
         | polishdude20 wrote:
         | In a way I think this is ok though? Like, when I reach that age
         | I sure as hell hope I'll have more access to doctors than
         | younger people?
        
         | notacoward wrote:
         | I had a strong reaction to that too. _Of course_ we devote more
         | health-care effort to people in the last 5-10 years of their
         | life, which primarily (but not entirely) means older people.
         | There is practically no world in which that wouldn 't be the
         | case, because everyone's health trajectory eventually trends
         | downward. By the time someone reaches the ICU (other than as a
         | result of trauma) not only the immediate problem but likely
         | several others will have progressed to problematic levels.
         | That's also where the most labor- and dollar-intensive
         | treatments tend to be applicable. It's just basic statistics,
         | really. Cars also cost more in maintenance late in their life
         | cycles, and so do many other things. A flat age distribution in
         | the ICU would be _super weird_ and probably an even worse
         | allocation of resources.
         | 
         | I don't think the author really meant that to come across as
         | callous as it sounded. Probably just poor choice of words. I'm
         | only addressing it because _someone else_ reading it here might
         | interpret it in more of an  "older people stealing from younger
         | ones again" kind of way for demographic or ideological reasons.
         | 
         | ETA: it already happened as I was writing this.
        
         | questime wrote:
         | Because of demographics this is a problem we will have to
         | confront regardless - do you think medicare/medicaid spending
         | will become 80% of government spending?
        
           | virgildotcodes wrote:
           | Maybe with higher taxes and a reallocation of defense
           | spending we'd be able to sustain a more humane society for
           | longer.
           | 
           | Is it indefinitely sustainable? Not sure. I don't know if
           | it's as easy as just extrapolating from recent trends because
           | there may be countless unknowns from biomedical advances to
           | climate destabilized societies to being turned into
           | biological batteries for our machine overlords in the next
           | few centuries.
        
             | ch4s3 wrote:
             | Having medicare operate under a fee for service model will
             | never be sustainable in the long run. We already spend $
             | 755 B on Medicare, which is roughly equivalent to the DoD's
             | $ 767 B, and Medicare is notoriously wasteful[1][2].
             | 
             | [1] https://www.healthaffairs.org/do/10.1377/hpb20220506.43
             | 2025/
             | 
             | [2] https://vbidcenter.org/wp-
             | content/uploads/2021/10/jama_shran...
        
               | skyyler wrote:
               | https://www.usaspending.gov/agency/department-of-
               | defense#:~:....
               | 
               | >In FY 2022, the Department of Defense (DOD) had $1.64
               | Trillion distributed among its 6 sub-components.
               | 
               | Where are you getting this 767B number?
        
               | ch4s3 wrote:
               | The treasury department's website[1]. I wonder if your
               | link is rolling in the VA? I can't quite tell.
               | 
               | [1] https://fiscaldata.treasury.gov/americas-finance-
               | guide/feder...
        
               | skyyler wrote:
               | >Department of Defense--Military Programs
               | 
               | I wonder if that means they're subtracting portions of
               | the DoD budget that aren't technically military
               | operations.
        
               | ch4s3 wrote:
               | As with many of these categories it can be hard to pin
               | down accurate numbers.
        
         | MBCook wrote:
         | I didn't read it as an indictment (why are we wasting all this
         | money on people who are dead soon anyway?) but more of just a
         | straight observation that makes sense if you think about it but
         | probably isn't what most people would expect if asked
         | unprompted.
        
       | questime wrote:
       | It's politically toxic to discuss but a ton of money goes to
       | keeping people not dead (not really alive either). You could give
       | a lot more people medicare/medicaid if we let a 90 yr old with
       | dementia/diatebetes/etc. pass with dignity.
        
         | TheOtherHobbes wrote:
         | Any form of euthanasia runs into the legal and moral problem of
         | who decides? And why?
         | 
         | You might think everyone wants to act in the best interests of
         | their relatives, but of course that's not true. Some people
         | will want to speed the natural process along because that
         | inheritance looks really appealing, and no one is really going
         | to miss the old guy/gal anyway.
         | 
         | Besides, that's not really the problem. The problem is
         | profiteering by insurance companies and the hospitals they
         | (effectively) run for profit, with patient wellbeing as a
         | regrettable requirement they have to put some effort into.
        
         | itestyourcode wrote:
         | Is it the same dilemma if we can kill one to save more?
        
         | wellareyousure wrote:
         | Yes, certainly people in medicine are aware.
         | 
         | > we let a 90 yr old with dementia/diatebetes/etc. pass with
         | dignity.
         | 
         | Often it's a 4 week old baby.
         | 
         | For every 1 sophisticated family member, there are 19
         | unsophisticated ones, who toss a weighted coin and, if it's
         | heads, they decide they want their dying, non-responsive
         | relative - possibly their baby, possibly their mom, etc. - to
         | be kept alive at all costs. I don't know if this is politically
         | toxic as much as it is cultural, and possibly globally
         | cultural.
        
           | questime wrote:
           | > Often it's a 4 week old baby.
           | 
           | You are stretching the word often, most people in the ICU are
           | close to the end of their life. A lot of people don't realize
           | but most of the time if you needed to spend weeks in an ICU
           | you are probably not "living" in a dignified way. Almost all
           | ICU doctors/nurses I've talked to would rather have a DNR in
           | their old age than live like that.
        
             | Eleison23 wrote:
             | Your human dignity is not predicated on how much pain
             | you're in, how awake you are, or how able you are.
        
         | z3rgl1ng wrote:
         | This is an oft-repeated piece of received wisdom that is
         | empirically untrue.
         | 
         | https://www.statnews.com/2018/06/28/end-of-life-health-spend...
        
           | robocat wrote:
           | Wow: just sample bias! We need to also look at the old people
           | who had expensive care and survived (95% of costs in that
           | article). Money does gets spent on hospital care just before
           | death (5%), but predicting how to avoid "wasting" that money
           | is hard.
        
         | voz_ wrote:
         | I don't think its politically toxic, but rather, extremely
         | humane that we care for our elderly. The real unfortunate part
         | is that we, in the working class, have to make due with sharing
         | slices of the pie so more money can go to our exploiters and
         | owners - especially in the US, we are such a wealthy nation,
         | and yet here we are bickering around who deserves care based on
         | age. Sad.
        
           | MBCook wrote:
           | > I don't think its politically toxic
           | 
           | Ever hear of the Obamacare death panels? The ones where
           | doctors would decide if your loved one was too old and
           | shouldn't get treatment?
           | 
           | Yeah. That's this.
           | 
           | What it really was that Medicare would pay for consultation
           | with doctors (?) to discuss end of life care and setup living
           | wills and DNRs and such if the person wanted.
           | 
           | That way if something happened and they were taken to the
           | hospital they could be treated the way they wanted to be and
           | not stuck in a coma on a vent for the rest of their life if
           | that was against their wishes.
           | 
           | But the Republicans branded then "death panels" (which for
           | political purposes was _brilliant_ ). So the choice of having
           | help making those decisions was removed.
        
           | questime wrote:
           | I disagree, spending on these things is growing at 2x GDP
           | growth so yes more of the pie is going to this. What I'm
           | suggesting is that at some point the pie isn't big enough for
           | this. No matter what happens eventually standard of care will
           | roll back/fewer people will be covered etc. Ideally we can
           | innovate out of this situation but after spending 8 years
           | working in healthcare I've gotten cynical about it.
        
           | neonate wrote:
           | We don't care for our elderly. We fear death.
           | 
           | If our society really cared for the elderly, they would be
           | integrated and respected, not segregated and shunned. We do
           | the latter because we fear age, sickness, and death. Fear
           | isn't caring.
        
             | rscho wrote:
             | > We fear death
             | 
             | In the US. It's perhaps the most striking difference that
             | hit me during my stay overseas. In the Old World we
             | occasionally get people completely panicking about their
             | own death. In the US, seemingly _everyone_ is like that.
        
               | neonate wrote:
               | I'd like to hear how elders are treated in these
               | societies that don't fear death as much.
        
               | rscho wrote:
               | I'd wager: not very differently. But not out of fear. The
               | social isolation of old age is the same everywhere. Young
               | people have their own lives to live.
        
         | croes wrote:
         | Where do you draw the line? At what age, what illness do you
         | refuse to treat a patient even though he may not want to die?
         | 
         | You could give a lot of people medical treatment with a proper
         | healthcare and tax system. Why don't we try that first?
        
         | chiefalchemist wrote:
         | Many of the top causes of death, per the CDC, are from diseases
         | that can be prevented or naturally mitigated. We're all going
         | to get old. We're all going to die. But carrying two or more
         | "pre-existing conditions" into your later years is going to
         | decrease your quality of life, as well as your use of
         | healthcare.
         | 
         | My point is, what's not sociopolitically allowed is discussing
         | how personal choice as well as normalized systematic issues
         | (e.g., urban food deserts) are killing us, slowly. It's
         | unfashionable to suggest someone's weight is (ultimately)
         | unhealthy. But the USA wants to have its cake and eat it too,
         | literally. That's not working out. It's not sustainable.
         | 
         | Finally, not to get off topic but over the last couple of weeks
         | there's been a thread or two on HN based on acticles suggesting
         | the GDP and similar "classics" economic metrics are hiding
         | underlying social issues. That is, for example, healthcare care
         | contributes to the GDP (or whatever) but that healthcare is for
         | diabetes, opioids, faltering mental health, etc. We're falling
         | apart but not to worry the economy is doing just fine.
         | 
         | It's complicated. But to your point, the fact that some
         | important topics are ofc limits isn't helping. Until that
         | changes the status quo will continue.
        
           | nativecoinc wrote:
           | There's a lot of talk about supposedly un-PC, taboo subjects
           | that are just not so.
           | 
           | We have many common diseases that are outright labeled
           | "lifestyle disease". And tabloids scream at you with
           | headlines like "This one weird thing will dramatically
           | [increase/decrease] your chances of getting Alzheimers".
           | Impolite subject? Sure, telling _an individual_ that they
           | should just lose weight is an asshole move since it won't do
           | any good, so in _that_ sense it is uncouth. But as a general
           | background noise that we are all supposed to accept? Oh, it's
           | not taboo at all.
           | 
           | It is of course completely irrational considering the toll
           | that the actual disease would have on me, but I am in part
           | afraid of getting something like T2 Diabetes just because of
           | the social stigma of getting a Lifestyle Disease (sort of
           | like a negative lifetime achievement award).
           | 
           | And as far as critique is concerned: I've been thinking
           | lately that the term "lifestyle" can be misleading for about
           | 30% of our lives. Because being "sedentary" is a lifestyle
           | now, and many of us spend a whopping 50% of our waking,
           | everyday lives being very sedentary in an office. (As for the
           | non-waking time we seem to be stuck with sedentariness.) When
           | I think of "lifestyle" I think of choices, but having a job
           | is hardly a choice for most people. So if the powers that be
           | really want to hold us 100% accountable for our own bad
           | choices, then they should at least give us standing desks,
           | those small walking treadmills, the opportunity to _go
           | outside_ and walk for longer phone calls and meetings, etc.
        
           | ryandrake wrote:
           | > My point is, what's not sociopolitically allowed is
           | discussing how personal choice as well as normalized
           | systematic issues (e.g., urban food deserts) are killing us,
           | slowly. It's unfashionable to suggest someone's weight is
           | (ultimately) unhealthy.
           | 
           | The recent push to try to re-frame obesity as healthy,
           | fashionable and sexy seems particularly bizarre and
           | unexplainable. It's the opposite of what happened with
           | cigarettes, which started out as fashionable and healthy,
           | then slowly became known as unhealthy and finally fell out of
           | cultural fashion.
        
             | lazyasciiart wrote:
             | I think the root of it is recognition that mental health is
             | as important as physical health, and that losing weight
             | isn't as easy as many people assume, and shouldn't be done
             | the way many people try - so actively shaming and
             | criticizing fat people for being fat is of negative health
             | utility overall.
        
               | chiefalchemist wrote:
               | > o actively shaming and criticizing fat people for being
               | fat is of negative health utility overall.
               | 
               | Fair enough. But then what do you suggest we do as an
               | alternative to normalizing diabetes and obesity?
               | 
               | To your point - kinda - about losing weight. Changing
               | behavior isn't any easier when there are too few
               | environmental signals to nudge behavior in a more healthy
               | direction. As humans, we are wired to assume the norm we
               | see around us. How do we reverse the tide when abnormal
               | (and unhealthy) has been normalized? When everywhere you
               | look, there are people just like you?
               | 
               | I do agree. Mental health is important. But a component
               | of that is (dealing with) adversity. I'm certainly not
               | condoning repetitive malicious bullying, but the current
               | climate has outlawed any/all references to traits
               | connected with being unhealthy. At this point there are
               | no social deterrents, are we really better off?
               | 
               | Have we robbed Peter to over-feed Paul?
        
         | ch4s3 wrote:
         | It's pretty well know and often discussed that up to 1/3 of
         | Medicare spending is wasted. Being fee for service doesn't help
         | but neither does spending 13-25% of all medicare dollars on end
         | of life care[1].
         | 
         | What's worse is how much of Medicare's wasted spending goes to
         | harmful treatments.
         | 
         | [1] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6610551/#:~:te
         | x....
        
       | [deleted]
        
       | w10-1 wrote:
       | It's a tough situation, and I'm glad his father is finding help.
       | 
       | I've spent a fair bit of time in ICU's on both sides. I think the
       | observations and conclusions show misunderstandings. Generally,
       | opinions are not ignored, nurses don't go wild, the patient
       | population makes sense for an ICU, the institutional memory is
       | actually fantastic, etc.
       | 
       | And most importantly: "There's no sense of a scientific method,
       | reasoning from first principles, or even reasoning from similar
       | cases though" This is complete and utter hogwash, borne of a
       | difficult experience.
       | 
       | They key idea is this: in complex cases, doctors have to identify
       | the condition that matters most, and prioritize that.
       | Collaboration is necessary to get the picture and give care, and
       | perhaps to consider alternatives, but it's not how you make
       | decisions.
       | 
       | It's hard to see symptoms ignored or under-treated. But it's very
       | likely that delusions do not make a difference in the patient's
       | recovery, but something like lung surfactant matters most. So
       | everything from fluid intake to drug dosage and activity are
       | direct accordingly. Unless they're symptoms of the main issue,
       | discomforts can be prioritized later after the main issue
       | resolves.
       | 
       | "Identifying the main condition" means understanding the actual
       | insult and the healing process for this patient; understanding
       | how symptoms, labs, and imaging reflect all the conditions i.e.,
       | how it presents (and skews labs or self-perception); and
       | understanding how all the interventions may interact with the
       | disease/disability states, from drug interactions to liver and
       | immune-system complications, etc.
       | 
       | It's not uncommon for other doctors and nurses and patient
       | advocates to have some slice of this complex picture, but it's
       | the attending who has it all, and the experience of other cases
       | and knowledge of the underlying conditions and interventions.
       | 
       | And, for the most part, the attending is not responsible for
       | explaining their understanding or reasoning to anyone. They do
       | offer reasons and make records, but there's no place or time or
       | even audience for comprehensive account of why other alternatives
       | weren't considered or followed.
       | 
       | Science, and medical trials, try to isolate single factors to get
       | reproducible outcomes. Medicine in the ICU has to accommodate
       | multiple factors, by focusing on the main disease/healing process
       | and optimizing for that.
       | 
       | As for value to society: good ICU attendings are key to good
       | outcomes for patients and their families. It takes decades to get
       | good. They produce far, far more value than they're paid, largely
       | because they do it as a mission. If they see people, particularly
       | those who enjoyed the benefit of their dedication and service,
       | disrespecting and misunderstanding them, it's likely to dissuade
       | them from continuing or dissuade others from their difficulties.
       | 
       | So complain all you want about digital advertising and go full-
       | disruptive to fossil fuels, but please be very, very careful when
       | attacking health care. Otherwise we'll end up with Russian
       | hospitals where you bring your own materials and pay your friends
       | of friends for side work.
        
       | Wonnk13 wrote:
       | For context see my comment here
       | https://news.ycombinator.com/item?id=33625584#33647770
       | 
       | One thing that this article touches on, but I think needs to be
       | emphasized even more is that the stark reality is that the only
       | advocate for the patient is the patient themselves, or perhaps a
       | caretaker.
       | 
       | The burden is on me to ask questions about fertility and sperm
       | banking because my oncologist is well... an oncologist not a
       | fertility expert. I have to ensure that every department is
       | communicating with every other department.
       | 
       | Hospitals and physicians are fantastic at solving discrete
       | issues, but the bigger picture is often lost in the chaos. I can
       | do it as a technically adept 34 year old, it's horrifying to
       | think about how someone closer to 80 goes about it.
        
         | dheera wrote:
         | I was in an ICU for a week after a cardiac arrest. I don't
         | remember much of it other than a lot of hallicunations.
         | 
         | I had family there to advocate for me, but there's no way in
         | hell I would have been able to advocate for myself. I was
         | literally seeing things around me in the ICU room that didn't
         | exist. My family were probably the only ones that realized that
         | that wasn't the real me.
         | 
         | The hallucinations stopped happening as soon as I was moved to
         | a normal patient room for the rest of my recovery, and I have
         | full working memory of that normal patient room.
        
           | chki wrote:
           | > The hallucinations stopped happening as soon as I was moved
           | to a normal patient room for the rest of my recovery
           | 
           | To be fair (and this is also true for the article itself), it
           | might be difficult to distinguish cause and effect here.
           | Being moved into less intensive care means that you are more
           | stable which might lead to other issues becoming better in
           | the following days regardless of whether you are in the ICU
           | or not.
        
       | voz_ wrote:
       | Great, well written article, I wish your father a speedy
       | recovery.
       | 
       | Anecdotally, when I was in the hospital (much more minor, at a
       | much younger age), they kept waking me up at 3am to draw blood
       | and clean and do god knows what, and the light outside my room
       | was constantly on. It felt... at best annoying, at worst,
       | downright jarring and disruptive. It certainly feels like the
       | sleep and rest parts of recovery and care need to be revisited.
        
         | bombcar wrote:
         | There was an interesting article that showed "state of the art
         | delivery rooms" from the 1950s - and they were ALL oriented
         | around the doctor and nurse's convenience.
         | 
         | Now we've moved back toward "birthing centers" which focus on
         | the mother and the baby; perhaps it is time for something
         | similar to grow across all aspects of care.
        
         | nobody9999 wrote:
         | >Anecdotally, when I was in the hospital (much more minor, at a
         | much younger age), they kept waking me up at 3am to draw blood
         | and clean and do god knows what, and the light outside my room
         | was constantly on. It felt... at best annoying, at worst,
         | downright jarring and disruptive. It certainly feels like the
         | sleep and rest parts of recovery and care need to be revisited.
         | 
         | After ACL reconstruction surgery many (~30) years ago, I was
         | required to stay overnight due to both the general anaesthesia
         | and the lateness (late afternoon) of the procedure.
         | 
         | I had a similar experience with the nurse coming in every two
         | (2) hours to take my vitals. I was trying to sleep, but she
         | kept waking me up. I groused about wanting to rest, but was
         | informed (direct quote) "this isn't a hotel!"
         | 
         | And it's not. Rather it's a money printing facility for the
         | owners of the health care system that runs the hospital.
        
         | [deleted]
        
       | dm319 wrote:
       | For older patients and those with significant co-morbidities, we
       | often advise against intubation and ICU admission in the UK.
       | Usually if the disease process can't be reversed on the ward with
       | current therapy, it is often unlikely in this group of patients
       | for it to reverse on ICU. However, it does depend on the context.
       | There was an interesting article that talks about doctor's
       | choices as an end-of-life patient [1] - they often choose not to
       | opt for aggressive life-prolonging treatments because they know
       | how it is like. I think that doctors need to improve the way we
       | talk about death with patients, and doctors can be just as guilty
       | as everyone else at ignoring the inevitability of death.
       | 
       | [1] https://www.zocalopublicsquare.org/2011/11/30/how-doctors-
       | di...
        
       | the__alchemist wrote:
       | Elephant in the room, related to the article's first point: We
       | have to tackle ageing. Many of the other diseases (cancer, heart
       | conditions etc) and causes of mortality are highly correlated
       | with it.
        
         | lazyasciiart wrote:
         | Heart conditions, for one, aren't caused by aging - they are
         | caused by being around for a long time so that the slow process
         | of atherosclerosis has time to become dangerous. We need to
         | prevent that process from happening by following standard
         | health advice, really.
        
       | georgeg23 wrote:
       | The hallucinations sound like a side effect from lorazepam
       | (Ativan) -- something hospitals give almost everyone but is a
       | hardcore drug.
       | 
       | Consider asking nurses to stop administering it after you do your
       | own research.
       | 
       | https://www.webmd.com/drugs/2/drug-6685/ativan-oral/details#...).
        
         | Fatnino wrote:
         | I went to the hospital for debilitating shoulder pain.
         | 
         | Came out 3 hours later with an xray that showed nothing wrong
         | and a bottle of Ativan. Still no idea why they gave that to me.
         | I didn't take any of the pills.
         | 
         | And the bill came out to over 7 thousand dollars.
        
         | copperx wrote:
         | It's hard to pin it down to a single drug. Having had both my
         | grandmother (80) and mother (60) in the ICU, and both got
         | hallucinations without Ativan. It could be so many things:
         | 
         | * The aftermentioned lack of sound sleep
         | 
         | * Anesthesia
         | 
         | * Painkillers
         | 
         | In the case of my grandmother, hallucinations and incoherence
         | lasted about three months after she was home. My mother's
         | lasted about 2-3 weeks. It was scary. They both eventually
         | recovered. But it is true that nobody in the hospital bats an
         | eye when acute dementia-like symptoms are mentioned. "It's
         | normal," they say.
        
       | ChrisMarshallNY wrote:
       | About 26 years ago, I spent some quality time (7 days) in ICU. I
       | wasn't just at Death's Door. I was pounding on it, and loudly
       | demanding admittance.
       | 
       |  _> Everyone agrees that sleep is important, but nobody has any
       | idea beyond that. _
       | 
       | I didn't sleep for pretty much the entire week. I was on lots of
       | opiates and opioids, though, so I spent most of that week in a
       | weird quasi-sleep "dream state."
       | 
       | I don't recommend the experience.
       | 
       | Most expensive hotel I've ever been in.
        
       | theNJR wrote:
       | My wife just gave birth and it was my first multi-night hospital
       | stay. The midnight pokes and checks were infuriating. It also
       | doesn't help that dads aren't the patient after a birth, so they
       | aren't fed or given a bed. Constant nurse changes were difficult
       | too.
       | 
       | On the plus side, I was surprised at the decent quality of food
       | given to my wife. Steamed vegetables and mid grade proteins with
       | every meal.
       | 
       | After two nights we made the case to be discharged. Everyone,
       | including nurses and family, thought we were crazy to leave so
       | early. Best decision we made and my wife recovered great. With
       | the built in iOS medication reminder app and a blood pressure
       | monitor I was able to manage her just fine.
        
         | languageserver wrote:
         | > After two nights we made the case to be discharged. Everyone,
         | including nurses and family, thought we were crazy to leave so
         | early.
         | 
         | In my country you don't even stay a single night if everything
         | goes fine. There is no medical need for parents and child to
         | stay at any hospital if there were no complications
        
         | misterprime wrote:
         | Congratulations! We just went through the same thing and
         | decided to leave after one night in post-partum. It's much
         | better to be at home if there's nothing concerning that needs
         | medical attention.
         | 
         | Side note: it was surprising how well the "dad chair" served as
         | a place to sleep after being awake for 24 hours.
        
       | ed25519FUUU wrote:
       | I'm fresh off of spending 24 hours in the ICU and I can say the
       | OP is right. It's impossible to actually "recover" there at all.
       | My singular goal while there was simply to get home to my bed,
       | even if it meant I could potentially die. I didn't care. I wanted
       | out.
        
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