[HN Gopher] Donald Triplett was autism's "case 1"
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       Donald Triplett was autism's "case 1"
        
       Author : jkuria
       Score  : 50 points
       Date   : 2023-07-15 17:42 UTC (5 hours ago)
        
 (HTM) web link (www.economist.com)
 (TXT) w3m dump (www.economist.com)
        
       | dang wrote:
       | Related:
       | 
       |  _Donald Grey Triplett: The first boy diagnosed as autistic_ -
       | https://news.ycombinator.com/item?id=10944335 - Jan 2016 (16
       | comments)
        
       | stefantalpalaru wrote:
       | [dead]
        
       | htag wrote:
       | Grunya Sukhareva was studying (and published about, including in
       | English) what we would now consider Autism in the 1920s. Perhaps
       | it is because she was a woman, or because she was a Soviet, but
       | histories often gives this credit to Leo Kanner or partial credit
       | to Hans Asperger. I understand this is an obituary, but it does
       | no one a service to indicate Donald Triplett was the first person
       | to be treated for Autism.
        
         | morelisp wrote:
         | There is a subtle but critical distinction in medicine between
         | describing a cluster of symptoms and diagnosing a new
         | condition. AIUI Sukhareva did the former and Kanner (also
         | citing Sukhareva in later publications) the latter.
         | 
         | In particular, I don't think anyone is claiming
         | 
         | > the first person to be treated for Autism.
         | 
         | (Which depending on how you approach the question must either
         | have been thousands of years before this, or could not happen
         | until after Kanner proposed its existence). Rather the article
         | is quite explicit,
         | 
         | > The first man diagnosed as autistic
        
         | benatkin wrote:
         | "case 1" is in quotes here and it says _diagnosed_ , not
         | _treated_. It doesn 't make the claim you're suggesting.
        
       | 7thaccount wrote:
       | Was autism super rare historically? Surely there were plenty of
       | cases over the centuries?
        
         | Der_Einzige wrote:
         | It was far less common. There is no way that the usual
         | arguments about better diagnosis criteria or other social
         | reasons account for the orders of magnitude increase in autism
         | diagnosis. Anyone here trying to tell you otherwise has an
         | agenda against biological or partially biological explanations.
        
           | [deleted]
        
           | tom_ wrote:
           | Could easily have been about the same, only with autistic
           | people beaten, possibly literally, into unhappy submission.
           | As with left-handedness and homosexuality, in many cases it's
           | probably not impossible to pass unnoticed if needs really
           | must.
        
             | peterfirefly wrote:
             | And most of the worst cases likely wouldn't have survived
             | childhood.
        
         | CitizenKane wrote:
         | To our knowledge it has been at a steady level throughout human
         | history. Kant was mentioned in this thread, Henry Cavendish was
         | also thought to be autistic. From Wikipedia:
         | 
         | > Cavendish was taciturn and solitary and regarded by many as
         | eccentric. He communicated with his female servants only by
         | notes. By one account, Cavendish had a back staircase added to
         | his house to avoid encountering his housekeeper, because he was
         | especially shy of women.
         | 
         | There are other threads that go back further as well, and at
         | least in certain cultures there's a fairly broad overlap
         | between shamanism, autism, and related neurological conditions.
         | I've seen some studies tracking certain genetic mutations back
         | and some at least are thought to have come about when humans
         | started becoming human. I haven't been able to find them again
         | but there are quite a few studies that can be found via Google
         | Scholar on the subject.
        
           | Madmallard wrote:
           | This is literally all conjecture.
        
           | chrisco255 wrote:
           | To our knowledge? What documented knowledge are you going off
           | of? You have a source on incident rates of autism going back
           | 10, 20, 50, 100, 150, 200 years?
        
         | hammock wrote:
         | >Was autism super rare historically?
         | 
         | Yes. We have never had more autistic people than today, and
         | cases in children began exploding in the mid-80s.
         | 
         | Early prevalence was lower, centering at about 1 in 2000 for
         | autism during the 60s-70s and about 1 in 1000 in the 80s,
         | compared to today's 1 in 44.
         | 
         | And it's not just that we started recognizing it better. Well
         | after autism become well recognized it continued to increase
         | among children.
         | 
         | The latest estimate of autism prevalence--1 in 44--is up from
         | the 1 in 88 rate reported in 2008 and more than double the 1 in
         | 150 rate in 2000.
        
           | dtech wrote:
           | Do you have any sources that back up increasing prevalism
           | over better recognition and broader diagnostic criteria?
           | Afaik almost everyone chalks it up to those 2.
        
           | maxbond wrote:
           | Nope, we're just learning to recognize it better,
           | destigmatizing it so more people seek out a diagnosis in the
           | first place, recognizing it's a spectrum and that people with
           | a more subtle expression of autism can still be diagnosed,
           | etc, etc, etc.
           | 
           | I know someone in their 50s who was diagnosed recently.
           | They've been who they are their whole life. I know a lot of
           | adults who have similar personality traits that haven't been
           | diagnosed - I don't know how many would be, if they were to
           | speak to a professional, but it's not 0. (I think there's
           | maybe a 25% chance I could get an autism diagnosis, were I to
           | talk to my doctor about it. People have encouraged me to, but
           | I personally don't see how that information would be useful
           | to me.)
           | 
           | These adults are the "missing" children from your statistics.
        
           | oxymoron wrote:
           | I think it's at least relevant to note that a lot of things
           | relating to autism was completely redefined in DSM-V. DSM-IV
           | had many different diagnosis such as classic autism, autism
           | spectrum disorder, aspergers and PDD-NOS (Pervasive
           | Developmental Disorder - Not Otherwise Specified). All of
           | those was merged into a single diagnosis titled "Autism
           | Spectrum Disorder", where the criterias are communication
           | difficulties and stereotypical behavior. My understanding is
           | that this was mostly due to poor diagnosis stability with the
           | prior set of diagnosis. It seems at least plausible that this
           | general simplification of diagnosis criteria has contributed
           | to an increase in the number of diagnosis. (It's also worth
           | remembering that any comparison over time has to bundle all
           | of the previously distinct diagnosis to come up with an
           | apples-to-apples comparison.)
        
         | guerrilla wrote:
         | I wonder about this too but there are people who definitely
         | seem to have been autistic, e.g. Kant, so it can't have been
         | that extremely rare.
        
           | jimmytidey wrote:
           | Because of his regular schedule?
        
             | guerrilla wrote:
             | Quoting Quora of all things here but:
             | 
             | > As autistic myself and student of philosophy, I'd say:
             | probably, yes. I've read books that contain testimonials
             | from Kant's students and collegues. He showed ASD traits
             | such as: (emotional and almost pathological) attachment to
             | very strict routines; inability to control irritability and
             | stress; inability to focus properly in certain situations
             | (a famous example was given by his students: one day at a
             | lesson he got stressed and refused to continue his speech
             | because he felt unable to concentrate due to a missing
             | button on a student's jacket); he admitted to feel the
             | inability to tell lies, even if for good purposes; in his
             | writings he excuses many times for not being able to be
             | clear about what he meant because he had an hard time
             | putting himself in the reader's shoes; he was described as
             | socially akward and indifferent to social norms and
             | costumes (famous was is dated and old-fashioned way of
             | dressing), and to social relationships. We can't of course
             | be sure about Kant being autistic, but there is a
             | possibility.
             | 
             | His "regular schedule" was more than that... It was a very
             | detailed and strict routine which he was extremely attached
             | to. I think his way of thinking so abstractly and also
             | being unable to summarize himself are also things that
             | resonate for me.
        
           | pyuser583 wrote:
           | Most of the biographical stuff I see about Kant emphasizes
           | his stereotypical Prussian traits.
           | 
           | Now that I think about "Prussian virtues" and autism have
           | some overlap.
        
           | yung_steezy wrote:
           | Wow TIL! The categorical imperative is making more sense now
        
         | NikkiA wrote:
         | It would just have been labelled either 'eccentricity' or
         | 'mental retardation' depending on the functioning level in
         | antiquity, I imagine.
        
           | furyofantares wrote:
           | > It would just have been labelled either 'eccentricity' or
           | 'mental retardation' depending on the functioning level in
           | antiquity, I imagine.
           | 
           | Or, sometimes, in 1985.
        
           | pyuser583 wrote:
           | The article says the doctors weren't familiar with what they
           | were seeing.
           | 
           | It was rare enough that psychiatrists, who were very much
           | looking for new ailments, just weren't seeing what he had in
           | other people.
        
           | derekp7 wrote:
           | I wonder if general education had a factor in hiding some
           | cases in the past. For example, is there much visible
           | difference between an under-socialized / under-educated yet
           | neurotypical person vs someone who is neurdivergent with that
           | same education level and social/work life? And do the
           | differences show up more when early general education is
           | available? (Hopefully I phrased that question correctly).
        
           | hourago wrote:
           | > depending on the functioning level in antiquity, I imagine.
           | 
           | The classical difference between them is money. When a
           | powerful person acted "crazy" the term used was
           | "eccentricity".
        
             | lolinder wrote:
             | That's the meme, and it probably did go that way (crazy ->
             | eccentric), but it's also true that someone who's just a
             | little bit off would be called eccentric.
             | 
             | It would not have been a very effective euphemism for a
             | crazy rich person if it didn't also have the nicer meaning
             | for everyone, rich or poor.
        
             | NikkiA wrote:
             | Mostly, yes. but there were clearly common people in
             | history that were described as 'somewhat eccentric' but
             | still managed a normal-ish life otherwise. The chances are
             | most of those were people who would today be labelled 'high
             | functioning autistic' or 20 years ago would have been
             | labelled as having aspergers.
             | 
             | What money/class-status afforded was the ability to be
             | _more_ eccentric without being pushed into an institution.
        
       | dkga wrote:
       | I really appreciate that the town embraced and protected Don. May
       | he rest in peace.
        
       | MollyRealized wrote:
       | https://archive.is/20230708014417/https://www.economist.com/...
        
       | faeriechangling wrote:
       | Since then the diagnosis has literally never been stable and gets
       | effectively reinterpreted every year to call an increasingly
       | large amount of the population disordered and in need of a
       | growing cabal of charlatans who are needed to cure them.
       | 
       | Total failure of a diagnosis and I see zero evidence that its
       | introduction has had a positive effect on society since nobody
       | has even attempted to measure if calling more and more of the
       | population names and insisting we treat them differently than
       | others constitutes healthcare.
       | 
       | Can't wait until we pass this medical obsession with behaviour
       | and people fitting in with social norms symbolized by the
       | diagnosis of "autism" and move onto a medical field that deals
       | with the real problems of the "autistics" like digestive issues,
       | sensory issues, social anxiety, etc instead of just slapping
       | people with the label of "disordered" and having teacher
       | assistants stalk them specifically in class or segregrating them
       | into special classrooms and making this normal/disabled
       | distinction to give them a complex.
        
       | jimt1234 wrote:
       | As the article mentions, Donald was featured in a documentary
       | called "In A Different Key". I highly recommend it. Very
       | informative about autism in general, the good, the bad, and
       | everything in between.
        
       | DangerousPie wrote:
       | The Economist's obituary section is usually well worth the read,
       | and this is a nice example. You can also listen to it through
       | their free Intelligence podcast.
        
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       (page generated 2023-07-15 23:00 UTC)